One of my biggest fears is that something will happen to me and Ryan and no one knows how to take care of Lynlee. I know I shouldn't think like that, but I worry!
I started a folder. It has how to make her formula, how to get a hold of anyone/everyone, what her feeding schedule is and how to use the pump, and a bunch of other info.
So if anyone ever needs to know that on our computer desk there is a pink folder with all of that info.
Now that we have all of that out of the way I'll give everyone a quick update.
Lynlee is doing amazing. Last week her ammonia was 17. No that wasn't a typo, it was 17!! The lowest we've ever had! So the formula change, the med change and the antibiotic is working!
Last week was my birthday. I'm not as into birthdays as I once was, but it was a fabulous day! Ryan, Lynlee and myself went to black water falls. Lynlee loved the water falls, and just being outside. As Lynlee was on a mission to walk up the flight of steps, she's miss independent these days, we saw a mother carrying her handicap child up the steps. My heart stopped beating for a second. It's moment like that, that makes me so grateful for how Lynlee turned out. 18 months ago we wasn't sure if that would be Lynlee. I didn't say anything to the mother, but silently said a little prayer thanking God for his blessings.
Other than that, our days are pretty uneventful, which is how I like it!
If I don't get in another post before Easter, the Happy Easter to each and everyone one of you!
Friday, April 8, 2011
I know, I've really slacked on my blogging lately. I find that I'm always first to blog when something is really bad or bothering me, but I tend to leave out the good things.
My days are busy! Chasing a toddler (wow, I'm kinda sad that I even said toddler) but she isn't a baby or an infant anymore, makes days well umm different.. Lynlee will not let me sit down and blog or do anything for that matter on the computer if she is awake. And unless I want to watch Talking Tom on the iPad for an hour I don't get that out either. So I find her nap time (we are down to just 1 nap now) time to do all the things I can't do while she is awake..Which is a lot..
But I love it!! I love the fact that she is walking and that I have her to chase.. And she is talking so much more. And by "talking" I mean more like babbling. The words Hi DADA are there. She says them with meaning. And we've heard a few others words every now and then like Nana, and eiler, for Tyler.
Every time she walks down the hall to me I get this huge smile on my face. Somewhere in the back of my head I still remember those first days in Pittsburgh where they didn't know what Lynlee would ever be able to do. If she would be able learn, walk, talk, anything..
I usually have some way in my mind to end my blogs, but today I can't think of any. Maybe it's the fact that Lynlee has stopped watching her movie and pinching my arm as I type. Or the fact that she's blown me away and I hope she's taught more than me a life lesson. Don't let anyone tell you that you can't do something!! And that my child is amazing :)