Wednesday, July 30, 2014

My little fighter

There's never been any doubt that Lynlee has been a fighter. From the moment she was born she has to fight to survive. She has been through more in the past 4 1/2 years than most of us will have to endure in a lifetime.

I'm not going to lie. I forget this. In the day to day routine she is still our "normal" 4 year old girl. I don't think of everything she has been through every single day because when life is good it's good. When we pick her up at day care and the only worry of the day was how many times was she in time out (for fighting) is our biggest problem life should be good right.

I laugh silently while typing this. How ironic is it that she gets in trouble for fighting.  I mean that's all she has ever done. And while we don't condone this at all. We punish her, explain its not right we don't hit, etc etc etc there are times I'm proud of her for fighting.

For instance: in just the past 12 months.. One year.. August 1st 2013 to August 1 2014 this is what my fighter has went through.

Lab work - 21 times (as an outpatient)
2 dental procedure that needed anesthesia
1 hospital stay that lasted 5 nights- that included multiple blood work, a liver biopsy, and a bile duct procedure
4 trips to Pittsburgh for bile duct procedures as an outpatient. Each time she was in day surgery.

So when I look back at just the past year and I've never been so proud to have a fighter..

So Keep Fighting Lynlee... Except be nice about it and don't hit ;)

Sunday, July 27, 2014

Surgery postponed and a few pictures

I thought I'd take a few minutes to update everyone on Lynlee's surgery that was supposed to be Wednesday. It has been cancelled again... After my last post she had high labs. We all felt it was from the runny nose, cough, cold etc. So we had repeat labs scheduled for the following week. In the mean time she wasn't getting any better. I took her to Express Care and she got an antibiotic for a sinus infection. This is when the surgery was cancelled. They won't touch her with an infection. We haven't rescheduled. Now if we would have it we are looking for recovery to be in the early weeks of school and I don't want her to miss the first few weeks. We are looking at possibly winter break, spring break or even next summer. We can do it anytime from now but of course the older she gets the harder it is on her and the more she will remember.

In the meantime we've pushed it all to the back burner. We have had repeat labs since, and they are trending back down. We are getting ready for a weekend in Cincinnati for a wedding and preparing for pre-k. I'm sure there will be more post about that. Lynlee had her first home visit so the paper work is complete and we should meet her teacher in the next few weeks. I won't lie I cried like a baby before, during and after her home visit... It will only get worse I'm sure. But I know in the big picture this is the right thing for her, or that's what they all say ;)

I think it's rained here almost everyday so we let Lynlee take advantage of it. She LOVED playing in the rain!!

 Two old photos from last month :) And before anyone complains Ryan was behind the rock wall holding onto her.

I think this picture here sums up her whole personality!

Until next time..... Happy Sunday :)

Sunday, July 6, 2014

Our Weekend in Pictures.....Happy 4th of July

I'm sure that most of you know that Lynlee's surgery for her abdominal muscles that I posted about last month was cancelled. She has had bad allergies/ cold so Pittsburgh rescheduled for the 30th of this month.  So we had no plans at all for the 4th as of Wednesday. Then a last minute trip to Canaan Valley with Ryan's parents was scheduled.

I'm not sure words can express how great of a time we had this weekend. One of the best vacations we've ever had..

Here are some of my favorite pictures that I wanted to share :)

First of all our view was AMAZING!!!

Lynlee loved mini golf

 Yesterday morning we took a chair lift ride to the top of the Mtn. Lynlee cried for about 30 seconds and then loved it. The view at the top was awesome.

There was a kite festival at the resort! We spent some of our afternoon at the playground and flying kites.

I have to say I think the best part of the trip was the pool. Lynlee finally LOVED the water and swimming!! I am so proud of her.

A wagon ride to roast marshmallows........

And on our way home today we stopped by Blackwater Falls.....

I wish I would have got a picture of the fireworks last night. It was a spectacular show and Lynlee was so excited about them. Only 4 years and she finally enjoyed them! She is growing up so fast and changing every day.  I am definitely a proud mom tonight.