Monday, April 21, 2014

Update. Bullet Style

I haven't really updated in a while. Things are boring with us but here ya go:
  • Lynlee's labs have been rock steady for months. Even with the stomach virus and a cold with a fever last month they were right now.
  • She is on one last med wean and then we will be back to her normal 3 meds that will she will take for most of her lifetime.
  • Everything she says no ends with my mom (or whoever she is talking too) For example today when we walked into speech I asked her if she wanted me to put her sunglasses in my bag. She replied "No on my head my mom." or my favorite it when I tell her something she always says "Alright my mom"
  • Last Wednesday I registered Lynlee for her dental surgery in May. I'm dreading this so bad. I know it's just a cleaning and fixing some teeth but it still stinks.
  • I turned 30 a few weeks ago. My husband threw me a huge surprise party. I really am a lucky girl.
  • We were out of town for Easter this past weekend. The first holiday ever we've woke up not at our house. It's okay though. The Easter Bunny brought Lynlee's present a day early. A DVD player for the car. We watched Frozen twice but she didn't make a sound.
  • Speaking of the weekend, Lynlee is getting an allergy to peanut butter. This is the 3rd time it's happened (not consistently with the peanut butter) but some times seems to be better than others. The last few times it happened she was eating it with something else really spicy and we kinda blamed it on the other thing. Yesterday when it happened she was eating nothing but peanut butter :/ She even had some on Thursday last week and she was not affected but it. So odd. But we have an apt set up to go from there.
I'm pretty sure I got it all. Told you we were boring people :)

Friday, April 11, 2014

Donor= Hero

Today is National Organ Donation Day. I've known for weeks I would make a blog post about it since it is something my world revolves around now. But Tuesday something changed the direction I'm taking the blog in.

On Tuesday I got a message from Lynlee's donors mom. I'm honestly not sure I ever thought I would hear from them and there is no way I would have ever thought I felt like I did. When I read the message and it said I'm your donors mom I know I read that over and over before I could continue. Like it wasn't sinking in that it was real.

I was so emotional, I cried for hours reading about this man. I mourned for his mother and for his family.  His mother, god bless her, posted everything about the accident that took his life and about his final days. She was posting up until the time he went into the OR, up until the time that he was becoming part of our family. She even mentioned a 2 year old getting a part of his liver.

I didn't know you could feel so connected to someone you didn't know. And up until this week I've always known Lynlee had someone else's liver (of course) inside her but it really hit me. That this man has a piece of him living inside her.  We are connected to him and his family.

Over the past few days I've talked to his mom multiple times. She's told me so much about him. He loved music, travelling, but most of all he loved his family. She said he had a heart of gold would have given Lynlee his liver anyways. She said he took amazing care of himself (flossed all day long) and was never in a bad mood. He never told a lie. He was a wonderful man.

So today I want to Thank this man. Victor Livingston  Harris for giving me my daughter. For giving us hope and faith for a future.  We will take such good care of your liver and hopefully your legacy. I promise we won't take any day for granted.

Thank you.