Monday, August 23, 2010

Me and You

Two years ago today I married Ryan! I knew it then, and I know it now that we are soul mates. Somehow in this crazy life I've met the person I belong with. The person that completes me! I hope everyone finds that love someday!

I still smile when he pulls in the driveway after work. I sleep better knowing he is beside me at night. One of the many things I've learned in the past 10 months is that we can make it through anything together.

In the past years we've been blessed with both birth and deaths. Ryan is my rock! I know that I couldn't have made it without him. We were together for seven weeks straight in the hospital and not once would I have had it any other way. Every time that Lynlee has been hospitalized both of us has been there.

Ryan has seen me at my best and by far my worst. Our love is strong, and it's special. I Love you, Honey!

The song was had as our first dance still says it all!

Me And You: Kenny Chesney

Ordinary no, really don't think so
Not a love this true
Common destiny
We were meant to be
Me and you

Like a perfect scene from a movie screen
We're a dream come true
Suited perfectly for eternity
Me and you

Every day, I need you even more
And the night time too
There's no way
I could ever let you go
Even if I wanted to

Every day I live
Try my best to give
All I have to you
Thank the stars above
That we share this love Me and you

Every day, I need you even more
And the night time too
There's no way
I could ever let you go
Even if I wanted to

Ordinary no, I really don't think so
Just a precious few
Ever make it last
Get as lucky as
Me and you
Me and you

Wednesday, August 18, 2010

It feels good to help!

I don't blog about the G-Tube much. I don't really talk about it on and day to day basis unless I'm telling Lynlee "No-No" to stop pulling it. I looked on Facebook and I've never posted a picture of it. In fact, I only have one picture of it. Why? Well one it's always covered! Unless we are traveling, getting ammonia or getting a weight check she is always in a onsie!

Another reason I don't take pictures of it is because it's just normal for me. It's something we've almost always known. I don't really know what do to do with "normal" babies without G-tubes. I don't know how to really feed them or burp them or what to do when they are gassy? Lynlee has never drank more than 50cc's (1 1/2 oz) of milk from a bottle.

(I've never posted this picture because it doesn't look like anyone is standing behind her. Ryan took the picture and I was behind her, so don't turn us in to child services!)

So when Pittsburgh called me yesterday to talk to a family about living with a G-Tube I jumped on it. I wish I had a family to talk to before we had made the decision. In fact, if we would have made the decision sooner we would have probably been home 2 weeks sooner. I called the mom as soon as I hung up the phone with Pittsburgh. I was excited about helping. I've been "helped" so much along the way from other mothers with Lynlee's disorder and I hope I can be help to someone too.

As I listened to this mom talk about how she feels like she is forcing her child to eat, how she felt she was letting her child down by not being able to feed them, and the one that hit home... How can you put your child through something to make your life easier. It felt selfish! I remember feeling all of those things, but at the end of the day Lynlee HAS to get all her formula and her meds or she will be REALLY sick. The decision made sense to us

I hope that the information I have about the G-Tube both positive and negative helps this mother make the right decision. I wanted to let her know that a G-tube is not the end of the world. It was the beginning for us. ( I stole that last line from my dad!)

Tuesday, August 17, 2010

A weekend away

Lynlee had her first vacation away this past weekend. We went to Beckley to stay at Aunt Pat's & Uncle Jim's lake house! It was a much needed weekend away!

We decided to get an ammonia checked on our way down. We pretty much pass the hospital, and it makes me sleep better. Ammonia... 28.. YAY!

This is only the second time I've been to a lake, and it is the most relaxing place I've found. It's so calm and quiet. Everyone even Lynlee just seems at ease and relaxed. The drive to and from the lake is about 3 hours. Lynlee never complains. I think she is used to traveling, she had her pappaw back there, and watched lots of Baby Einstein.

Lynlee went on her first boat ride and she loved it. She loved looking at the waves the boat made.

She had her first touch of sand. Of course I called our pediatric team in Pittsburgh to see what we needed to do about the sand getting around her G-Tube. We simply covered it with a bandage and away we went.

All and all the weekend was amazing, lots of relaxation and with only a pinch of unwanted excitement. We were doing a group picture when 1/4 of the family including me, Lynlee, and Ryan were on top of the boat house. A bees nest that was under the step got extremely upset with us and started attacking. Luckily the three of us was not touched but Lynlee had to be taken off the boat house by a ladder. She did great as her pappaw lowered her to the ground. Me on the other hand? Standing at the top crying like a baby. I couldn't even watch.

We had lots of laughs, lots of food, and lots of relaxation.. One of the best weekends yet!

Tuesday, August 10, 2010

Bare with me...

If this is the last blog that kinda/sorta makes sense please don't hold it against me. Tonight we are starting to wean Lynlee off night her continuous night feed.So for a few weeks we are going to feed her every 3 hours. I know I'm not going to get pity from most of you moms since you have got up with your child in the middle of the night. But I've never had too. I've always (well most nights) got 6 to 7 hours of sleep. I still get up to fill Lynlee's milk up but that's like 2minutes once a night. Things are about to change....

Other than that things with us has been the same. We went back to Pittsburgh last Wednesday. Other than being a long day and a two hour wait on Ammonia (blah!) it was a good day. Her ammonia was 58.

Lynlee is now clapping. It's by far the cutest thing I've ever seen! I worked with her for weeks and weeks to learn to clap. Then on day she woke up from her nap and just started clapping. We are working on Bye-Bye now.

She has to get attention every where we go. If we are in line at Wal-Mart she will grunt at the people behind us or the cashier until they pay attention to her. I wish she would do something (like squeal) to get their attention but she grunts.. LOUDLY I might add!

At her weight check today she weighted 22.13 pounds. Whew, I knew it. My hip is killing me lately!

This weekend we are taking Lynlee to the lake for the first time. I'm super excited. I'll blog about it when we get home :)