Thursday, October 25, 2012

Another ER trip

I'm not found of going to the ER. I'm not sure anyone really is but usually when you walk in there with a 3 year old and tell them they have had a liver transplant and/or genetic disorder everyone FREAKS out.. Seriously it is so hard getting Lynlee treated as a normal child. Don't get me wrong there are times I don't want her to be treated as normal. I WANT to be that priority because of medical reasons but more times than not I want them to treat her as they would any other child that walks in the door with those symptoms..

Our pediatrician is awesome at knowing the difference... Most ERs (actually the correct term is ED now) is not.

So when I called our pediatrician last night and she told me yes we really had to go I wasn't excited. But I knew Lynlee needed treated before morning. When I took her diaper off to get into the tub there was blood in it. We've been down that road before. Last time I was panicked this time a part of me was almost relieved. I knew she had a urinary tract infection.

I had been watching for days for her to be sick. She's been so off for days. Been mean really mean to other kids and just irritable. She had a friend come over on Sunday to bring her present, they were playing in her room and he came out with scratches on his face was bleeding!! Yes, it was bad. Tuesday at school she pulled kids hair.. and not just pulled but pulled it out.. I was mortified. Getting out the door was horrible. One morning we both sobbed...

I hoping, well more like praying, this was all related.. That she is just not herself because she wasn't feeling well.. I guess I'll get back to you next week on that.

she was totally peeking at the people beside us. haha
But regardless the ER, ED. whatever trip was great. The wait was long but the doctor was great. She didn't freak out. No extra test were ran. We were treated like any other child that walked in off the street..  And Lynlee was a jewel. She didn't nap yesterday and was playing and entertaining herself until midnight...

Not that I hope this happens again anytime soon but this time wasn't sooo bad..

Wednesday, October 24, 2012

Wordless Wednesday: Painting Pumpkins

Yesterday afternoon we painted pumpkins.... Last year we carved them, and well I just think we will paint until Lynlee is old enough to handle a knife.. So she will be like 16 then, right?

You  might remember last years pictures from the pumpkin carving.. These pictures are taken almost a year to the date.. well minus 2 days to be exact...


And finally on to your Wordless Wednesday.. Like I can ever keep my mouth shut.

Monday, October 22, 2012

Birthday weekend recap

I thought I'd take a few minutes and share you in on the wonderful weekend we had. As you know Saturday was Lynlee's birthday so we had a small party for her Saturday evening. She did so good. It was the first holiday/birthday that she actually opened present, she played and she had fun. All she kept asking for was a bike. She can pedal OR steer... Not both.. So this is a learning process but she loves it.

Here's a few favorite pictures of the day.....

Yesterday was pretty low key. We had plans to go to the pumpkin patch but a late nap and even later lunch got us distracted. It was getting colder before we knew it so we pushed it back to next weekend. Besides playing with all the new things is way more important.

And today was okay. It was a Monday and we've moved Lynlee's speech therapy to twice a week now (until I start working full time) plus she had her development testing for her IEP. I'll let you know the results when I do.
The Dry Erase markers will now only be used when someone is in there...

Dinner, visit with friends, bath time and bed was the rest of our day. I'm ready for some major downtime myself so good night all...

Saturday, October 20, 2012

Happy 3rd Birthday!

Dear Lynlee,

Happy Birthday Baby Girl. You're three today. Today is the first "normal" birthday that you've had and it's the beginning of so many more. You'll eat your birthday dinner with all the other kids, and you'll eat cake, and ice cream and I can't wait!

I'm so proud of you. It's been a rough year, but you never cease to amaze us. You've always been a fighter. You've always been so strong. You went through your transplant as a trooper. You defied odds that I can't wait to explain to you. You've made so much progress in every single stage of development. You've grown up so much in the past few months.

You started a preschool this year and you love it. You're trying to say so much more. You're eating! You're growing. Oh boy are you growing. And you're so smart. You have so much potential. I can't wait to see what the next year,  the next 10 - 20 years hold for you. You're going to make a difference. You have a huge purpose in the this word. You've endured more than most ever will and you always come out smiling.

I find my strength in you. You keep this whole family going, and fighting, and never giving up. I believe in God and in Miracles because of you. And at the end of the day I'm so proud to be your mother and proud to be apart of this journey.

Enjoy your day!

I love you to the moon and back times 10...

Thursday, October 18, 2012

Something more

I've always known Lynlee was special. God obviously has big plans for her because if he didn't I'm not sure we would be here now. She's always had this personality that draws people to her. For someone that doesn't talk a whole lot she sure has a way of captioning every ones attention. We can go anywhere and people notice her. Not a trip to the grocery store goes by where people don't just stop to talk to her.

It's the strangest thing to me, I guess because she doesn't get this from me at all. Ryan's pretty social, me not so much.. But part of me thinks it's something more than just being social. It's just something more.. Something that bigger.. Something that's part of his plan..  And I'm just happy to be along for the ride and to be able to watch.

Does all of this lead to something? Well yea kinda. I've been thinking about this blog for a while but I was afraid I didn't have the right words to show you what I mean.. To explain how it works.. And I don't. But I know that if any of you reading this has been around us for 5 minutes then you get it. Lynlee probably has that affect on you, no explanation needed.

We are gearing up for the big birthday weekend. Lynlee has got a few presents already. Her Nana came down and took her shopping last weekend, and Pap and Meme stopped by yesterday and gave her presents.. Earlier in the week I got an message telling me to stop by the lab at our hospital that one of our favorite lab techs had got Lynlee something. So after school today we had a few free minutes to stop before I had to be home for my webinar (another blog) so we headed over. Claire had got Lynlee a present. And as we were walking out today it hit me. Another person we've met along this crazy journey that Lynlee has an effect on.

Her present from Claire!

The past three years have been hard, parts have been devastating, but the life lessons we've learned and the people we've met along the way have been amazing. From our UCD (Urea Cycle Disorder Families) to the transplant moms/kids to the nurses, lab techs, doctors and everyone else makes this ride worthwhile..

Thank you for being apart of it!

Friday, October 12, 2012

The only thing that stays the same is everything changes.

Things are changing around here once again and I'm not just talking about the new blog design. This is what I actually do during the vice president debate. Other than laugh hysterically at the fact that I don't even have to watch it I can totally facebook and see what happens. But you guys know I'm not a big blogger of politics.. I will only say that Paul Ryan gets on my nerves to no end.. And should be able to buy a suit that fits or pay for a damn tailor!!

Okay moving on...... Today we had Lynlee's IEP meeting with the school. I can't believe she's turning 3 in eight days (but whose counting right) and that I actually went to an IEP meeting at the school system. For now we won't be using the system but we have a plan in place just in case. Ryan and I have decided with her going to her preschool 3 days a week and her speech therapy sessions that we are satisfied with that for now. Our goal realistically is to keep our schedule like this until at least next August and then decide on preschool at the schools, etc...  But that will depend on balancing all of her stuff, Ryan's job and my job...

Yes you read that right.. MY JOB. I had an interview this morning and by the time she left I had done my paper work and accepted. I am EXCITED, REALLY EXCITED!!! I have accepted to be a Service Coordinator for Professional Service Coordination working with Birth to three. It's really an ideal job for me/us right now. You can make your own hours (per say) work around sickness/doctors appts etc, and help other families... Lynlee's been in the program since she was 3 months old and will be out of it in 8 days. The therapist and service coordinators are like family to us. They've been through it all and I'm beyond thankful for all of them.

On days like today I find it so hard to believe that it's been almost 3 years since Lynlee was born. I won't get all sappy on you yet.. You have 8 days to prepare for that.. But honestly there were days couldn't talk about Lynlee turning 3. I never knew when or if I would go back to work. I never knew if I would trust someone to care for Lynlee and god forbid I ever send her to a "school" I thought I would keep her in this house until she was 45 (or ran away!) All jokes aside we have came such a long way. I'm so proud of her. Proud of myself too.  But I'm not sure she can still ever move out. Just saying.

Wednesday, October 10, 2012

Wordless Wednesday: Field Trip

Yesterday Lynlee had her first field trip at school. I was excited about going with her to see how she acted with the other kids.. I didn't really see a whole lot. She was pretty attached to me the whole time as most kids were with their parents. She's definitely the smallest in the class. They walked to the firehouse and she was not into having her picture taken? I'm not sure what her deal was.

She got into the truck but was ready to get out!
After school we went and picked up Brody. I just had to share this photo of them today. He's getting so big!
Happy Wednesday everyone!

Monday, October 8, 2012

Weekend Recap.. In pictures :)

I can't believe it's Monday already. The past few days have flew by! It was nice to have two days with my husband and Lynlee as a family.. It was such a great weekend!!

Friday started by heading to the coronation to see Lexi... I'm a very proud aunt..

After that we headed to the petting zoo...

Got some carny food... Lynlee's first EVER...

Lynlee snapped some pictures with Aunt Heather before the fireman's parade..

And then we watched the fireman's parade.. Inside of course. Lynlee is not a fan of the sirens or the bands etc....

On Saturday we talked about going to the parade but since it was cold and rainy we headed the mall. I loved Lynlee's new outfit from Aunt Janna.

The trip was good.. Lynlee got her Halloween costume and momma got some new boots :)

And Sunday was a lazy day...

No joke all we did was head to the grocery store and make potato soup, pepperoni rolls and brownies..  Yumm..

It's back to the real world today. I think it will be a busy week. Lynlee has a field trip at school on Tuesday to the firehouse and I have a job interview on Friday.. My first one over 4 years. Wow...

No labs this week.. We actually got the okay to go a whole month. I'm not getting my hopes up but it would be oh so nice.

Happy Monday everyone!

Tuesday, October 2, 2012

Tuesday Randoms..

I've never seen her smile like that? I hope its not a regular!

  • I had planned on blogging last night but I totally got side tracked. Besides of watching the voice and being disappointed I felt like I was on the phone all night... Plus doing  100 other things.
  • I have done nothing really today other than working that and I'm okay with that.
  • I signed up to do the 31 day challenge of Jillian online. I debated blogging about it but thought I'd mention it so now that I'm accountable in 2 places. I took before pictures but I doubt you get to see those either. I'm so not that brave. But pretty much you vow to do 31days of Jillian. I'm doing the shred. Plus trying to eat healthier, drink lots of water and all that jazz.. We will chat more about that Nov 1st when the challenge is over.
  • This weekend we went to Davis for leaf peepers festival. So much fun.
  • Yesterday was labs.. Lynlee cried and cried.. She had gotten so good at them, it breaks my heart for us to be back here. They were a little high but NOTHING compared to what they have been. I'm sure it's because of the fever and the cold she has. I'm hoping we get at least a couple week break from them.
  • I dread calling the insurance companies, hospitals, etc.. I will put them off forever. Yes I'm mentioning it because I'm putting it off now.. I know I have too. For the first time in almost 3 years we got a bill? Really??
  • Lynlee's in school as I type. This morning she kissed us before she ran in! HA! Guess she wasn't wasting any time coming back out..