Wednesday, May 19, 2010
We truly are blessed!
Since Lynlee has been born not one night has went by that I don't lay down and pray before I go to sleep! I pray for good ammonia the next day, for signs if the ammonia is up, for a cure or a miracle for her, for our friends, family, other UCD families, etc.. But I always, ALWAYS thank the Good Lord for all he's done for us! For the many ways he's blessed us and I'm going to be thanking him twice as hard tonight!
This is a hard blog for me to write! As I sat here with tears running down my face I realize not everyone is as blessed as we are! And Believe me I know how blessed I am. Everyday waking up in my own house with an amazing daughter I'm blessed. Blessed with how good she is doing, better than we were ever promised both physically and mentally..
I talked to Corie today. Savannah is struggling! She is on continuous dialysis for her ammonia. The IV meds aren't working any more and oh how my heart aches for her! To be that momma setting there watching your baby go through dialysis AGAIN! Those are feelings I hoped that none of us would ever have to experience again. They are waiting for a liver transplant! I pray that the perfect liver comes soon!
Today I feel blessed just to have Citrullinemia. We could be dealing with a lot worse. Yes, we could be dealing with a lot better, but today Citrullinemia doesn't suck as bad. I know Corie would love to be in my shoes today, and so would thousands of other moms and kids with a thousand other diseases!
So please feel blessed for what you have! And say a prayer for those less fortunate tonight!