Easter Pictures

No news is good news from us. Things are very low key around here. Last week I did have Lynlee back at Urgent Care on Wednesday night. I was 99.9% sure she had an ear infection. She was pulling on her ears, crying, saying they hurt.. But I was wrong. She had a sinus infection and said she might have some pressure. She seems to be feeling better, but still has a runny nose. Is it spring yet?? I'm so over the sickness. We've never been as sick as we have this winter.

 I did get Lynlee's Easter pictures back today and wanted to share with you a few of my favorites. If you are on facebook you've seen a few.

Good news plus lots of pictures

Good news! Lynlee had labs this morning and they were lower. Not completely normal yet but low enough to cancel her procedure on Thursday. She will have labs again in two weeks. If they are back to normal we can forget about the procedure all together :)  I'm definitely a happy momma today!

We had an amazing weekend weather wise. 60 some degree yesterday! yay... Lynlee and two favorite cousins spent the afternoon outside.

These kids need to stop growing up so fast!

The past few weeks we've seen more tantrums than normal. Getting out the door is terrible. Really  bad. I "hear" this is very normal but I'm hoping its a stage that passes fast. Yesterday we literally left kicking and screaming and without shoes on. (and that was just Ryan!) Kidding!!! haha..

So today before speech I let her dress herself from head to toe and at her own pace. We left without a tantrum but I can't say she matched.

From last post I said I had been working out. Lynlee has been watching and doing it with me. She does her own exercises all the time. She loves some push ups and does them good!

 

Hey, even princesses workout :)

And this outfit we've had for two years now? I can't remember the last time we bought clothes.

I snapped this picture leaving a restaurant the other night. Lynlee had to wear Vavas coat and she made Vava wear hers.

 

Last night we went out dinner. We ordered Lynlee her food but she wasn't having it. She wanted dads and helped him finish it with her drink. She LOVED shrimp! And who doesn't love Bacon Cheddar Fries. We definitely need to do more push ups today!

Last but not least I was debating showing you this picture. Lynlee had her Easter pictures taken this weekend and I snapped a picture before we left. She looked so pretty ( I know I'm her momma) but I can't wait for them to be back.  And I'll post them for sure!

Happy Monday!

Snowday

There was a snow day for Lynlee and I today. Poor Ryan has to go to work no matter what the weather is while the two of us get the luxury of being fair weathered (have I told you how much I LOVE my job???)

Even with snow days we don't sleep in. I heard Lynlee open the door to her room around 7am this morning. I don't really trust her at all so it didn't take me long to get down the hall and see what she was getting into.  This is what I found:

She cracks me up. Cartoons and Animal crackers.. I only let her eat a few that early and then we had breakfast.. Don't judge!

I'm in total summer mode trying to lose a few pounds so I got in a quick workout (30 minutes with Jillian Michael's today) and Lynlee was dressed for the part too..

She has wore that headband ALL Day... Even has it on as I type.. And randomly.. Am I the only person in the world that can't wear them? They slip off as soon as I take one step??

Oh and we cheered on the Lady Bulldogs in our TVHS clothes...

And the day wouldn't have been complete without homemade chili... Who doesn't have Chili on a snow day...

Hope everyone had a relaxing day as we did... Till next time.

Monday Randomness

Today has been a crazy productive day! It might have something to do with the fact that I was asleep before 9:30pm last night and slept until 7am. I woke up with a ton of energy so I made a huge to do list and blogging was the last thing on it :) Dinner is in the oven as I type.

Things are good around this place. Ryan has been working a ton.This is day 8 in a row and won't be off until this weekend (hopefully!) When he got home last night he wanted to go out to dinner and since well he's the money maker I just go with it.

Lynlee had to wear her ear rings..

No they aren't real just her stickers. I'm very anti piercing. I'm not sure I'd feel this way before Lynlee but she has been through so much I can't imagine putting another hole in her body and make her go something so traumatic until she is old enough to ask for it herself then I'll gladly take her..

When she came out of her room this morning she pointed at her hair and laughed. It might have been the worst case of bed head I've seen with her.

Ha, it still cracks me up..

 

You might be hearing from me more this week. Since I've finished all my chores in one day and there's a huge snow storm coming I'll have some free time. Who am I kidding there is always something to do in this house..

 

Rare Disease Day

Today is Rare Disease Day. As most of you know Lynlee was born with a rare Disease (Citrullinemia) which lead to a liver transplant when it became unmanageable.

A Rare Disease has made a world go upside down.

A Rare Disease has made a appreciate life and all the small things in it.

A Rare Disease made us love a little harder.

A Rare Disease made us pray a little longer.

A Rare Disease brought so many people together.

So today I hope you wear your Jeans for the Genes.

And most of all we hope you don't take any day for granted. That you smile today. That you laugh and love hard today. That you appreciate the small things because we never know what tomorrow might hold.

Pittsburgh, sickness, etc

Last Tuesday Lynlee had her ultrasound. We drove 6 hours total for a 20minute procedure. It was a long day with a little shopping and some awesome food :) The results showed everything was clear which stumped the doctors. They were sure it would show something. They wanted to get labs today and do an MRI of her bile ducts early next week just to make sure there isn't something hiding in there.

(Lynlee waiting on Aunt Heather to try on dresses on our Pittsburgh trip)

Last week Ryan and I both came down with a terrible cold. No joke, I don't remember the last time I felt that bad. Ryan called off from work one night and I was in bed every night by 10. We are still pretty stopped up but feeling much better...

(When mommas sick on the couch Lynlee does hair)

So of course Lynlee comes down with it. Her nose started running over the weekend and she hasn't been sleeping well.. She had labs today and they were about the same. Still high. They can't sedate her with a cold so they decided to get labs in two more weeks and we will go from there. We are going to reschedule the procedure but that doesn't mean she will have to have it. Basically we are praying for perfect numbers in two weeks..

Speaking of praying,Ryan and I went to church for the first time in a long time yesterday. Our Godson got baptized and we were honored to be apart of it. I feel like with Lynlee's medical stuff and some personal stuff going on we have a lot on our plate. The sermon the preacher gave really spoke to us. And I left there feeling so much better. I'm not one to preach or push religion,but it's awesome how God knew we needed that.

I think other than all of that things are the same. No real update... I've been working some, finally have some of my own clients. I can't tell you how thankful I am for a job that it doesn't matter that I need days off to take of Lynlee.. And other than the cold Lynlee is awesome. She's still going to school a few days a week and having her speech therapy. She's making some progress, I'm so proud of her.

(Love these two!)

 



Update & Results

It's been a rough week. I can't remember one that has been this bad. Both physically,mentally,and emotionally draining. I'm ready for the weekend. To have time with my husband, with our little family and hopefully rest up.

The trip to Pittsburgh was exhausting. Ryan had to work so his mom went with Lynlee and me. Lynlee LOVES hotels. She gets so excited in them. She never seems to sleep and never wants to leave. We made a mall trip just to pass the time.

Did I mention she loves the luggage carts too..

The night we got about 2 hours of sleep total. She was not resting, complaining of multiple things hurting etc.

(Two thumbs up for dad!)

 

(playing Dr. with Vava)

The procedure it's self went fine. Lynlee fell asleep before they took her back thanks to some meds they gave her and she slept for about 2 of the 4 hours of recovery. She had to be on her back for 4 hours afterwards then they had to draw labs make sure her blood level was okay and then we could go. We arrived at the hospital at 7:30am and left at 4:30. Long day..

(Bed rest watching Barney)

They called today with the results. No Rejection!!! But they did see some change in her bile ducts and said they would be calling Monday to schedule an ultrasound. We don't really know what that means, what they will have to do or anything at all until they take a look at it..

This afternoon Lynlee spiked a fever.. And then this evening she started vomiting. I'm hoping she gets so some rest tonight to fight it.