Wordless Wednesday.... weekly favs

 

 

A few of my favorites from the weekend to today!

 

 

The simple things.....

It's the simple things that still get me. That still bring tears to my eyes on a monthly, sometimes weekly, or even daily basis. Don't get me wrong I see the big picture. The gift of life. I reminded of the real possibilities every time we get labs, but it's still those little moments that really get me.

 As we left the Clayton Homes Trick or Treat tonight I drove home with tears dripping off my face. This is the first year Lynlee can, will want, and will eat her candy she got there. We are so beyond blessed.

I even love the fact that she refused to wear her bee costume tonight. I told her she had to dress up so she went to her closet and got her princess outfit that she got for her birthday. She put it on with no fight and was ready to go.

There is NO WAY my baby has grown this much!!!

 

This is not the blog I had planned on writing tonight. I wanted to recap you of the amazing we weekend we had as a family. Enjoyed the warm weather and each other.. But that's enough of that. I'll put up some pictures of the weekend on Wednesday... or maybe tomorrow...

Working girl

Is it Friday yet? I feel like I just blogged but have so much to catch you up on.

We had labs on Monday. The liver labs were okay. One number was on the higher end but I'm sure it's because she's been fighting stuff all month long. Her prograf was stable and her EBV the lowest it's been since March.. We go back in one month! Yes, I'm one happy momma!!!

Tuesday I drove 40 minutes one way to vote.. I know, if I can drive 40 minutes I should be able to take 5 minutes and go to the court house and register there. I voted as Stacy Lynn Ware. Wow, it's been a long time since I signed that name. But regardless I voted...

Yesterday and today has been nuts. I'm not used to the whole "working" mom thing. I had training both days around 30 minutes away. Each morning Lynlee and I were out the door by 8:20 so she could be to school and it was after 5 both days before I walked back in. I know most of you do it all the time, but I'm tired and whiny so give me a minute. HAHA... No it was bad just an adjustment. I haven't made dinner since, my house is a mess, I have laundry to do, but I love it. I love having something to do and somewhere to be out of the house and something for me. I have so much more patience with Lynlee of an evening and I think I make more time just to play because I miss her so much.

Since today was a training day I couldn't reschedule anything so I did miss her 1st Halloween party. I was really bummed,but Ryan and Dottie took my place.

Here's a picture I took of Ryan and Lynlee before we all headed out this morning. Man I'm a lucky girl to be blessed with both of them. They are my world!

On another note Lynlee has been much better at school this week. No hair pulling! I'm assuming it was just her feeling bad from the UTI...

Ryan is back on 2nd shift now. Just when I got used to sleeping by myself. Guess I'll get to share tonight

I'm on the road tomorrow! I think it's just one shadow appointment since there have been a few cancellations but I'm excited!!

Have a great Friday! I know I will!

Sunday rambles

Is it really not even 9pm? This time change is killing me. I'm struggling to stay awake so I thought I'd ramble for a bit.

Lynlee's already in bed. She didn't nap today. And All day long I kept saying was well if the clocks hadn't been turned back it would be this time.. Wonder how long that will take for me to stop saying it?

I got to sleep by Ryan 4 times this last week. Two nights were because of the power outage and then he was off early on Friday and then off last night. I usually don't type about Ryan working since he's on midnight shift but everyone knows.. One car is gone so it's obvious. And  if someone would break in it's not like we don't have a huge dog that will kill you or if you would get by him I'll shoot you. No questions ask.

Okay now that we got that out of the way.. We have a super buys week coming up. Lynlee has labs in the morning. The first time in a month.. I'm praying they are good. We've NEVER EVER went a month for labs... Even before transplant her ammonia was so unstable we were biweekly for 2 years. So it's a big deal. 

Both of our vehicles have recalls on them so they are getting fixed this week. Lynlee has her check up that was rescheduled from last week and I have job training on Wednesday and Thursday.. And possible job shadowing on Friday..

Everyone knows Lynlee loves Barney but lately she's been showing interest in Elmo.. And last night at Wal-Mart I found a Wiggles DVD super cheap and bought it.. She liked it, A LOT! but it is soo annoying. I wish I would have remembered this from when Lexi was a kid. There should be warning labels on the box!

Speaking of last night it was date night. Lynlee spent the night with Ryan's parents so we had dinner and breakfast alone today.. How odd.. It's always so nice and somewhat weird to be alone with Ryan for more than a few hours at a time. We don't get that often but it's so enjoyed when we do.

 

Lynlee is in a hat and scarf stage. Well really anything she can put on!

 

Okay.. Until next time. 



Quick Update.

I can't believe it's been a week since I've blogged. I had some awesome pictures of the weekend to post and meant to on Monday but I got lazy... And well my pictures are gone (I'll get to that in a moment.)

The weekend was good. Lynlee and I had went shopping with my grandma and my little sister Kara. We had an awesome girls day and Lynlee came home with a snow suit and boats. How appropriate.. Sunday we went to my grandmas and had lunch. They let Lynlee blow out candles for a late birthday dinner..

Imagine a picture of Lynlee blowing out a candle here :)

Of course most of you know the storm hit Monday evening. We lost power at 5am Tuesday morning and it came back on last night at 11am. Ryan's parents had a generator and we headed over there for some heat and sanity! They could even run the DVD player so Lynlee could watch movies... I guess getting out of the car on Tuesday my phone fell out of my pocket. It laid in the snow for about 45 minutes to an hour and was gone.... So we ended up going to Clarksburg yesterday for gas for the generators and to AT&T...

We came home this morning and got things back to where they needed to be. This week has flew by, I can't believe tomorrow is Friday. It's definitely a bittersweet week. Brody starts his new sitter Monday and I'm supposed to be on the road training some. I'm excited... But I will miss him soo! It's all a part of life and moving on I guess...

But that's about it I guess.. I feel like I should have soooo much to talk about it... And I'm sure I will once my head get back to normal. I'm tired and whiney.. But so very thankful we have heat (and did) and the necessities unlike some out there.

Another ER trip

I'm not found of going to the ER. I'm not sure anyone really is but usually when you walk in there with a 3 year old and tell them they have had a liver transplant and/or genetic disorder everyone FREAKS out.. Seriously it is so hard getting Lynlee treated as a normal child. Don't get me wrong there are times I don't want her to be treated as normal. I WANT to be that priority because of medical reasons but more times than not I want them to treat her as they would any other child that walks in the door with those symptoms..

Our pediatrician is awesome at knowing the difference... Most ERs (actually the correct term is ED now) is not.

So when I called our pediatrician last night and she told me yes we really had to go I wasn't excited. But I knew Lynlee needed treated before morning. When I took her diaper off to get into the tub there was blood in it. We've been down that road before. Last time I was panicked this time a part of me was almost relieved. I knew she had a urinary tract infection.

I had been watching for days for her to be sick. She's been so off for days. Been mean really mean to other kids and just irritable. She had a friend come over on Sunday to bring her present, they were playing in her room and he came out with scratches on his face was bleeding!! Yes, it was bad. Tuesday at school she pulled kids hair.. and not just pulled but pulled it out.. I was mortified. Getting out the door was horrible. One morning we both sobbed...

I hoping, well more like praying, this was all related.. That she is just not herself because she wasn't feeling well.. I guess I'll get back to you next week on that.

she was totally peeking at the people beside us. haha

 

But regardless the ER, ED. whatever trip was great. The wait was long but the doctor was great. She didn't freak out. No extra test were ran. We were treated like any other child that walked in off the street..  And Lynlee was a jewel. She didn't nap yesterday and was playing and entertaining herself until midnight...

Not that I hope this happens again anytime soon but this time wasn't sooo bad..

Wordless Wednesday: Painting Pumpkins

Yesterday afternoon we painted pumpkins.... Last year we carved them, and well I just think we will paint until Lynlee is old enough to handle a knife.. So she will be like 16 then, right?

You  might remember last years pictures from the pumpkin carving.. These pictures are taken almost a year to the date.. well minus 2 days to be exact...

Wow!!!

And finally on to your Wordless Wednesday.. Like I can ever keep my mouth shut.